Saturday, February 25, 2012

Why I Choose Not to Drop Sign Language for My Daughter Who Has a Cochlear Implant

By breastpumpreviews

I started looking at cochlear implant options for my daughter when she was three years old. My daughter was born deaf and has a bilateral hearing loss. Her hearing loss was detected when she was born, she failed the initial hearing screening that was performed at the hospital. I had to take her back to the hospital for a repeat hearing screening about two weeks after we left the hospital, once again she failed the hearing screening.

Then she was referred to the ENT to determine if her hearing loss was caused by fluid in her ears. Her ears were normal and they weren't being blocked by fluids. So the next step was an Auditory Brainstem Response Test (ABR). She was just a few weeks old when these were performed, she had to sleep during the test so that they could get an accurate result. After several failed tests, it was determined that she was in fact deaf.

To read the full post, please click here: http://breastpumpreviews.hubpages.com/hub/Sign-Language-Cochlea-Implant

Monday, December 5, 2011

Cochlear Implants and Music: Your Thoughts?









Click on English subtitles and enjoy!

Deaf Community and Cochlear Implants- new book!

The cochlear implant debate has changed, as evidenced in this cogent collection that presents 13 chapters by 20 experts, including several who communicate through sign language but also utilize cochlear implants. The impetus for this change stems from recognition that both visual and aural input can enhance the education of deaf children.

Divided into four sections, Cochlear Implants: Evolving Perspectives first focuses on the impact of implants in the Deaf community. Chapters in this section examine the issues driving the cochlear implant debate, the ethics of genetic engineering, experiences of implanted adult deaf signers, reflections of deaf mothers who have had their children implanted, and the effects of implants on deaf identity. The second section delves into the mechanics of bimodal processing, including listening strategies that can benefit signing children with cochlear implants. The third section surveys combined aural/visual educational approaches, such as teaching implanted children in an ASL/English bilingual classroom, and applying auditory rehabilitation to a signed communication context.

The final section challenges readers to reframe the debate first by exploring sensory politics, then by envisioning an emerging world that requires the Deaf community to connect with it to secure its future. With this information, readers will reach their own conclusions about cochlear implants and auditory and visual approaches to the mastery of both spoken and signed languages.

Click here to read the table of contents, the list of contributors and a sample chapter for free: http://gupress.gallaudet.edu/excerpts/CItoc.html

Tuesday, November 15, 2011

Deaf Families with Cochlear Implants Study

An online survey for Deaf parents of Deaf children with cochlear implants and their perspectives on bilingualism:

What is the purpose of the study?

There are few studies from deaf families’ perspectives on deaf children with cochlear implants. The purpose of the study is to explore deaf families’ beliefs, perspectives and attitudes about language development in ASL and English. This brings a unique aspect to the research field in gaining an understanding how deaf children with cochlear implant who have deaf parents develop spoken and signed languages. This study also may help improve educational practices with deaf children with cochlear implants.

Who may participate in the study?

Deaf families in North America who have children with cochlear implants are encouraged to participate in the study. At least one parent or a caregiver who is deaf in the family is eligible to participate. Their language use may range from being fully oral to being bilingual in American Sign Language and English.

http://www.handsandvoices.org/resources/tempDocs/flyerresearchMitchiner.pdf

For more information contact Julie.Mitchiner@gallaudet.edu

Wednesday, January 19, 2011

Good Educational Resource

I am always looking for links to reliable, informative websites regarding educational research for D/deaf kids. When I find them, I pass them on. Here is one from RIT and Marc Marschart.
http://www.rit.edu/ntid/cerp/edcwebsite

Friday, November 19, 2010

BKB-SIN test

I promised I would give an update of my daughter's booth test when I got it. She was tested last summer, but there was a mix up in getting the report out, so it took a bit longer than expected to get the results, but here they are:

She took the BKB-SIN test, which tests signal to noise ratio compared to "normal" hearing. In this case, it compares how loud the background noise is for a hearing person to get 50% correct answers, and compares it to how loud the background noise needs to be for the person with the hearing loss to get 50% correct. Here is an explaination from a BKB-SIN users manual.
"If a normal-hearing subject requires a +2 dB SNR to obtain 50% correct on a speech-in-noise test, and a hearing-impaired subject requires a +8 dB SNR to obtain 50% correct on the same test, the SNR loss for the hearing impaired subject is 6 dB."

Her SNR for both ears tested together was 3.5 dB. If I understand this test, that means that she needs 3.5 dB higher signal to noise ratio than kids her age with "normal" hearing in order to get the same amount of understanding of the verbal information given.

That just amazes me.

Tuesday, November 2, 2010

Myths

One of my biggest frustrations when doing my research on ALL THINGS DEAF was the vast amount of myths I encountered. If the people and groups giving me information would have just limited themselves to telling me what they did well and why, it would have been fine. But they could not seem to stop themselves from also telling me what "the other side" did poorly. And therein lay the foundation of MYTHS. I have to tell you, those spouting the words "AG BAD" really irritated me. They didn't help their cause at all. Badmouthing differing options cast them in a very poor light. Those who tried to use the 4TH GRADE READING LEVEL to try and promote their agenda got me angry as well. I encountered those who told me that kids with CIs could not take baths because they would have WIRES STICKING OUT OF THEIR HEADS. I was also told that my child would never learn language unless (take your pick) WE LEFT OUT SIGN LANGUAGE AND WENT WITH AVT/WE WENT STRICTLY ASL WITH NO ORAL LANGUAGE.

Give me a break.

The myth I dislike the most is the one where people told me that we should wait to have our daughter implanted because she should have a say in it. We just needed to wait until she got older so she could decide for herself. Any parents who buy into this myth are deluding themselves. The younger the child is at the time of the implant, the easier it is for that child to learn to process the signals into meaningful sound. The older they are, the harder it is. If the parents wait until the child is old enough to decide, chances are good that the child will not be able to make very good progress turning those signals into meaningful sound. The simple act of waiting itself makes the decision. Whether they want to or not, the parent does decide. The only exception is if the child's hearing loss is not profound, and they have good use of hearing aids. In that case, they are not even eligible for implants so the point is moot.

I have encountered myths both from the ASL Deaf Community, and the oral deaf. All these myths produce is anger and disappointment in the families who are new to these issues, trying to raise their baby in this new-to-them world of hearing loss. They lose trust in the people giving them the information, and they are very likely to reject those they find they cannot trust. And that is probably the saddest outcome of all.

What myths did you encounter?

Friday, October 15, 2010

Another Viewpoint

In an earlier blog, "Does It Have To Be Either/Or", a person added a comment that has stuck with me. I have been mulling it over for a while, and I thought it was important enough to repeat it here in its own blog.

The comment is as follows:
I can only respond to this comment with my experience as a hearing person who learned ASL as an adult. I am an interpreter and a teacher. I teach deaf and hard of hearing children. I came to teaching in a much different way than most teachers of the deaf as I was an interpreter before I was a teacher and therefore my bias is that I have a cultural perspective on the Deaf Community rather than a pathological or deficit perspective.

When I see little kids with implants, even though I realize their parents have made that decision out of love and desire for their children to be the happiest and most successful thay can be, my heart hurts. It isn't a logical response but an emotional response. One lovely little deaf kid who will no longer be Deaf. A future member of the community - lost. A next generation of leadership, one for the current group of teens to mentor, no longer there. If your child with a (working) implant is actually bilingual and bicultural - bravo! This is unusual.

I know one challenge to youth programs I am involved in today is including deaf kids with CIs who do not sign fluently but are learning. How do we make the most of the precious time the ASL using deaf kids who can't hear at all have to actually socialize with complete freedom and ease as equals with their peers and yet still accommodate those kids who can't sign well enough to understand fluent ASL? The ASL using kids NEED time in an ASL envorinment for their own linguistic and cognitive development - they are all mainstreamed and have hearing parents so they don't get this opportunity very often. However, once the CI kids arrive, the number of kids using English-based signing and speech alone rises. This means the ASL using kids are once again (in the long list of times they are marginalized - home, school, everywhere they go) out of the loop and wondering what people are saying. This is a dilemma. No easy answers in a world where Deaf people are an increasingly tiny minority.

I hear what s/he is saying (the comment was anonymous). I am sorry that the commenter's heart is sad at the growing number of kids who are implanted. It doesn't change how I feel about my decision to have my daughter implanted. My allegiance as a parent is to my child only, and making the best decisions I can for her future. I knew at the time that this would not be a popular decision in the Deaf Community, but they are not my responsibility. My child is. However, it doesn't change the fact that many Deaf, do feel this personal pain at seeing these little kids wearing implants and jabbering away like hearing kids do. Their feelings deserve my respect.

The commenter's last paragraph is very important and relevant to what is happening now. How do we try to integrate those kids with implants who want to learn ASL into the Deaf Community, while continuing to support those kids who use ASL as their primary language, and need the Deaf Community for most of their social support? If there is a Deaf event, it is important for parents and the adults involved in it to impress upon the CI kids how important it is for them to use ASL at all times. The CI kids need the practice signing, and the ASL kids deserve complete access to all conversations that are going on. Your thoughts?

Monday, October 11, 2010

Bullying

All the recent tragedies in the news about suicides from bullying and harrassment has me concerned. I have seen some nasty bullying in comments over the years on various blogs in DeafRead. It is the biggest reason I won't yet let my daughter participate on this blog. I just can't trust the commenters to behave themselves around a 12 year old girl. The anonymity of the blogesphere seems to breed comtempt. But it is not just here. As noted above, people seem to be getting more callous and hard-hearted everywhere. Somewhere during the "Me" generation, parents forgot to teach their kids compassion for others. The things they can get away with online seem to have blurred the lines with face-to-face interactions as well. People simply seem to no longer care about the feelings of others. It seems that as long as they can justify their behavior to themselves, anything goes. If a teen takes her own life, and the bullys that made her life hell can justify laughing at her during her own funeral, there is something seriously wrong with how those kids were raised.

There is really only one solution to the problem, and it starts with the parents. We must, absolutely MUST start teaching our kids respect and tolerance for others. In. All. Situations.

If we are to teach this, we must first live this. Online, and in real life, we must learn how to respect one another even if we disagree with their opinion. Every human being deserves to be safe, in body and soul. There is no justification for putting somebody else down because you disagree with something they have done, or believe, or how they live. Tolerance for others must become a priority in our lives. Religious, cultural, sexual orientation, physical differences, and for the D/deaf community - choices in D/deaf lifestyle. I don't care how you feel about someone's implant. They have a right to have or not have one, and parents have the right to choose this for their kids. An implant or the lack of one, does not make the person. We all have the responsibility to respect each other and not put them down or bully them because of their or their parent's choices. If kids in a deaf school are teasing another kid because s/he has an implant, it is probably because they learned at home that it was ok to get down on someone with an implant. If you as a parent have allowed that attitude, and your kid has become a bully because of it, you have some serious mirror work to do. Can any of us look at ourselves in the mirror without shame if we have allowed intolerance to fester in ourselves or our kids?

The only thing we cannot tolerate is intolerance. Please talk to your kids. Please look at the message you are sending them with your own words and actions. Please teach the difference between having an opinion different from someone else's and disrespecting them because of it. You never know when it will save a life.

Monday, September 20, 2010

Does It Have To Be Either/Or?

If there is one thing that confuses me about Deaf Culture, it is the seemingly insurmountable wall between ASL Deaf and oral deaf. I know absolutely that there are people out there who happily live in both spaces. They sign, they talk, they live their lives. But there also seems to be this attitude that proclaims "If you were oral and are part of the ASL Deaf Culture, then being oral deaf must have failed for you." People seem to question the success of implants if they see a Deaf person with a CI who is signing and an active member of the Deaf Community. Is there no room for someone who wants a Deaf Identity, who also enjoys the use of their implant?

My daughter is developing her Deaf Identity. She knows she is deaf, and would not change that. She likes being around other D/deaf people. She doesn't care if they are CI recipients, have hearing aids, or if they are ASL Deaf. She feels comfortable being around other D/deaf people. I would not change that for anything. I think it is important for her to have a good self image, and feel good about who she is. But she also loves her implants. She used to cry if we tried to take them off for naps or at bed time. She has an extensive CD collection, and loves music. She talks naturally and easily to her hearing friends. She even talks in her sleep.

I would not be surprised if she chooses to go to Gally for college. If her dream is to become an interpreter, that would be the best choice for her. I see in her, the ability to accept all types of deafness in other people, without judgement or prejudice. But I cannot say the same thing in return. If you see a deaf person with a CI using ASL, do you think "Their choice, their life, fine with me." or do you think "The CI must not work if they have to sign."

Some Deaf have said that they would welcome CI deaf into the Deaf Community if they respect and use ASL, even if they continue to use their implants. But the moment they show up, the response seems to be, "See, they need ASL. The implant must not work because here they are." I see it differently. I see that the Deaf Community is doing something right if CI deaf feel comfortable enough to want to participate in the Deaf Community even if they can easily speak and hear with their implants. What do you think? Please keep the comments respectful, or I will use my delete option. This is a moderated site.

Monday, August 2, 2010

Audiogram


I have said before that my daughter has made amazing use of her implants. She has especially good use with her left one, which she has had since she was 12 months old. She had a booth test the other day, along with testing in noise. I don't have the noise test report back yet, but here is her audiogram. CL is her left cochlear implant hearing, and CR is her right cochlear implant hearing.

Monday, July 19, 2010

This Week - Church Camp

My on-the-go kid got back from deaf camp, spent a long weekend with us at a family get-together, spent half of the next week with her grandparents, and is now off to church camp.

She has been a busy girl, but that is what summer is for. She loves deaf camp, but she also loves church camp. There are no other deaf kids at church camp that I know of. She will spend the next week with other jr. high kids from across the region. Hearing kids. And she will be fine. She will not have communication issues, just as she did not have communication issues at deaf camp. She is bilingual. That was our goal. Is she totally fluent in ASL? Not yet. But her skills are good enough to allow her to be independent within the Deaf Community. And she will continue to improve, because she wants to, and we want her to. We will continue to provide her with opportunities to improve her ASL skills. But she is also able to be independent in the hearing world. Is her hearing as good as the other kids at camp? No. Will it ever be? Probably not. But it also does not pose a major road block. She can speak and hear well enough for us to comfortably send her to a hearing church camp without an interpreter or any other communication aids. She jumps right in and starts chattering with the other kids at the table. Time for mom and dad to go. She has already moved on from goodbye without a backward glance. Just like she did at deaf camp.

This is what we wanted for her. The ability to choose her own path, and to be able to navigate that path with ease. Have fun at camp kiddo.

Monday, June 28, 2010

Will She Win the Chatty Kathy Award This Year?

We took our 12 year old daughter to camp yesterday. Such an insecure child (not). She was barely aware of us as we drove off, just managing to wave goodbye, before she was off to visit old friends and make new ones. Her counselors this year are totally ASL, with no voice. She didn't seem to have any concerns, and dove right in with her signing. It does not matter whether she uses her voice or her hands, she is a talker. Every child gets an "award" certificate at the end of the week. I can't remember what she got last year, but the year before, she got the Chatty Kathy award. I am positive that she earned it. The girl can chatter. We have to regularly remind her that half of a conversation is listening to the other person. "Oh yeah!" I am very hopeful this year that she will not only improve her ASL skills, but that she will spend more time letting the other person get a word in edgewise. Hey, a mom can dream can't she?

Thursday, June 17, 2010

Friday, June 4, 2010

Speaking of Camps...

If you are in or around Oregon, there is a wonderful kids Deaf Camp called Camp Taloali. Here is the link: http://www.taloali.us/

They use primarily ASL, but are capable of handling both SEE sign and kids who are primarily verbal with implants. They also allow siblings and friends if room is available.

My daughter has gone there for the past two years, and she loves it. She has really been working on her ASL skills this year, so we will see how much she has improved since last summer.

Monday, May 31, 2010

Camp Mark Seven for HoH and CI users




Hard-of-Hearing and Cochlear Implant Camp Sessions

Youth Session: Hard-of-Hearing & Cochlear Implant users July 25 to August 6, 2010

Children’s Session: Hard-of-Hearing & Cochlear Implant users August 8 to August 20, 2010

Information:

CM7 is offering a new camp program this summer for children and youth who are hard of hearing or with a cochlear implant. Spoken English will be the primary mode of communication. CM7 counselors, themselves hard of hearing or with cochlear implants, will be employed, thus serving as excellent role models.

This program will occur at the same time as the Deaf Children’s and Youth programs; however, the majority of activities for each program will be separate, geared towards the needs of campers for each program. Campers enrolled in each session may use sign language with Deaf campers and staff during shared meal times and certain activities.

Each session runs for two weeks: Children’s session (ages 9-12), and Youth Session (ages 13-16). Campers will have many opportunities to participate in different activities, to discuss their unique identity, and develop own leadership skills.

Waterfront activities will include swimming and tubing. Hiking, canoeing and camping overnight in the wilderness will offer each camper the opportunity to learn to appreciate and embrace Mother Nature.


http://www.campmark7.org/

Friday, May 21, 2010

Grateful

Back in late 1998, my baby girl came down with meningitis. It was a scary, stressful time for our whole family. We knew before she left the hospital that the disease had claimed her hearing. We also knew we wanted to look into a new option for partial restoration of hearing - the cochlear implant. It was a mad scramble time for us. She still had many health issues, and we had many medical appointments as well as beginning to climb the HUGE learning curve that is deafness.

By early spring in 1999, we had chosen to go the SEE sign total communication path, along with getting the cochlear implant. But back then, there were not a lot of children in our area who had one, so we only had adults to talk to. And there weren't many of them either. Along came a 60 Minutes episode featuring a 14 year old girl named Caitlin Parton. This was actually a follow-up on an episode originally done when she was six years old. The program showed some of that initial episode, along with her current life at 14. She was the first child with an implant that I had actually heard speaking and interacting with people verbally. This was the first real hope I had that this scary path we had decided upon would actually give our daughter usable hearing. If our daughter could get half of what Caitlin had, we would be thrilled. I cried through most of the program.

Our daughter took to the implant like a duck takes to water. She had hearing aids, which she hated, but by the time we got home from her first appointment to activate the implant, she wanted it on. She stunned even the doctors with how quickly she progressed, and how well she did with her implant. She now has bilateral implants, and is in middle school. She is almost as old as Caitlin was when that 60 minutes episode was aired. And she is doing just as well.

Caitlin is an adult now, and has recently had her story told here:
http://www.newstimes.com/default/article/Woog-s-World-The-Parton-family-speaks-up-494864.php

I just want to take this opportunity to thank Caitlin and her family for their willingness to tell their story publicly. I know they faced a great deal of criticism from the Deaf Community because of their decision to give her an implant. But they also gave hope to a lot of families like ours, when we really needed it. One reason I blog is in honor of them and others who came before me to help pave the way. Paying it forward and giving hope to families who follow me is the way I can say thanks to them for their bravery and willingness to go public with their stories.

Thanks Caitlin (and parents).

Tuesday, April 20, 2010

Your Child Has a Cochlear Implant: Why Include Sign Language?

This article was published in the Spring 2008 edition of The Endeavor, the magazine of the American Society for Deaf Children (www.deafchildren.org). It is reprinted here with permission.

Debra Nussbaum is an audiologist and coordinator of the Cochlear Implant Education Center at the Laurent Clerc National Deaf Education Center at Gallaudet University.

Over the past 10 years of my 30-year career in deaf education, I have focused on children with cochlear implants. I've worked directly with hundreds of children and their families, attended countless workshops and conferences, and networked with thousands of professionals on this topic. I have witnessed the potential of this technology to provide quality sound to children who are deaf. I also have observed that just getting a cochlear implant is no guarantee that a child will be able to learn to listen so well that he or she can use only listening to learn.

Each child with a cochlear implant is unique, and there does not appear to be a single approach that is the one right approach to develop language and communication for all children with cochlear implants. For this reason, the Cochlear Implant Education Center (CIEC) at the Laurent Clerc National Deaf Education Center at Gallaudet University is focusing on examining a variety of ideas and strategies for children with cochlear implants that value and develop spoken language while also valuing and developing sign language and Deaf identity.

Maybe you've heard the frequently expressed opinion associated with cochlear implants within some parts of the medical and deaf education community that "the use of sign language will limit the outcomes for spoken language development through the cochlear implant." We continue to find that families are counseled to either never sign with their child (even prior to a young child's getting a cochlear implant) or to stop signing with their child (even older children who have used sign language for quite a while) once they get their cochlear implant. When this notion is conveyed to families of children getting cochlear implants, it is difficult for families to provide evidence and support for why sign language should be included. As there is not yet enough research, why should the use of sign language be considered for a child with a cochlear implant?

Here are a few things to think about:
-For young children, cochlear implant surgery does not typically occur until approximately 12 months of age. By the time the speech processor of the implant is turned on and the child has even a brief opportunity to access quality sound, at least 14-15 months of prime language learning time has passed. Recognizing the crucial importance of establishing language foundations early in a child's life, it makes sense that sign language should at least be considered as a foundation of early language for a child until the auditory sense has time to develop and the child has opportunities to listen.

-For older children (beyond the early language acquisition years) who are established, successful sign language users and who then get a cochlear implant, the transition to becoming an auditory-only learner may not be realistic. The cochlear implant may offer the child awareness and enjoyment of sound and the ability to develop some important skills in communicating via spoken language and developing literacy. However, spoken language may not become the child's primary way to communicate.

-Some children, even with a cochlear implant, may struggle to develop listening and speaking skills. They are wired to learn more visually. It is often not clear what a child's learning style will be with a cochlear implant and whether sign language could and should be an integral part of the language and communication practices. If a child with a cochlear implant does acquire a greater competence and a preference for using sign language and does not develop equal competence in spoken English, it is important that the child's proficiency in sign language be valued and the child not seen as a failure with his or her cochlear implant.

-A cochlear implant is a physical device. It can break, the batteries can die, it can get lost, children may refuse to wear it, the internal device can fail, and nobody wears it 24 hours a day (contact sports, bathing, etc.). A child's competence in sign language offers language and communication abilities that are beneficial when the cochlear implant may not be available.

-Bilingual development and the use of both American Sign Language (ASL) and spoken English as separate languages should be strongly considered as a "first choice" option for children with cochlear implants. If both ASL and spoken English are developed and used before and after a child receives a cochlear implant, this approach can promote competence in two languages which can benefit the child in his or her learning, social interactions, and identity as a deaf individual.

-If an oral environment is being considered for a child with a cochlear implant who also uses sign language, it is beneficial to consider using guidelines to confirm whether the child is ready for such a transition. For an example of such guidelines, see: Children with Cochlear Implants Who Sign: Guidelines for Transitioning to Oral Education or a Mainstream Setting (PDF) from Children's Hospital. These guidelines also can be used to document the functioning of a child in an oral environment to determine whether he or she could be better served in an environment that includes sign language.

At Kendall Demonstration Elementary School at the Clerc Center, we have designed a bilingual ASL/spoken English model to meet the needs of children with cochlear implants and are evaluating its effectiveness. We are finding that with appropriate planning and supports in place, many children with cochlear implants are developing language foundations in both ASL and spoken English, and that sign language is not limiting their spoken language development. In fact, we are finding that the use of sign language is beneficial in helping children build their skills in spoken English.

Use of cochlear implants and a bilingual ASL/spoken English model is gaining momentum with both hearing families, deaf families and the greater Deaf community. We are observing a recent trend with deaf families beginning to consider cochlear implants for their young deaf children. In addition, we are seeing emerging discussion within the Deaf community regarding the benefits of using both ASL and cochlear implants. For more information about issues surrounding ASL and cochlear implants, refer to the ASL-Cochlear Implant Community website, http://aslci.blogspot.com. (K.L. comment - Yes I know this is referring to us. It was in the article)

Making choices about the best way to approach language and communication development for a child with a cochlear implant is not always clear. While the goal of obtaining a cochlear implant is to increase a child's potential to access sound for the purpose of developing spoken language, it is important to keep this goal in perspective with all of a child's needs and look at how sign language can be included. Yes, spoken language must be addressed and valued in the child's environment, but sign language also can play an important role.

For further discussion about using both sign language and spoken language as an option for children with cochlear implants, see the following resources:

Nussbaum, D. Cochlear Implants: Navigating a Forest of Information: One Tree at a Time
Children with Cochlear Implants Who Sign: Guidelines for Transitioning to Oral Education or a Mainstream Setting (PDF)

Sign of the (Changing) Times. Loud and Clear, A Cochlear Implant Rehabilitation Newsletter, Issue 2, 2006. (PDF)

Chute, P., & Nevins, M. E. (2002). The Parents' Guide to Cochlear Implants. Washington, DC: Available from Gallaudet University Press

Christiansen, J., & Leigh, I. (2002). Cochlear implants in children: Ethics and choices. Washington, DC: Available from Gallaudet University Press

Thursday, April 15, 2010

ESOL/Bilingual Programs Don’t Apply to ASL/Spoken English Students at Public Schools


-written by Anonymous Deaf mother of Deaf ASL CI User

I just visited a public school in our neighborhood to consider enrolling my son for Kindergarten next fall and my son's current speech therapist joined us for the visit to provide support. We met with the school’s speech therapist and she was very excited to work with my son who has a CI as she has never worked with one but has heard a lot about CI. She usually works with hearing children who have language delays, some of them due to learning disabilities or autism but not with bilingual students who participate in ESOL (English for Speakers of Other Languages) program.

My son is still learning to improve his English grammar because he is fluent in ASL at home with his Deaf parents. So, we consider him being bilingual in ASL and spoken English and it may take him a little longer to become completely proficient in both languages like many other bilingual children (Spanish-English, Chinese-English, etc). Our speech therapist told us that the ESOL/Bilingual program doesn’t apply to my son but he would still need speech therapy although he doesn’t have significant delay in spoken language. Is it because ASL isn’t considered a language in their school system? That sort of bothers me.

There are so many bilingual children at the school that need ESOL/Bilingual services and they don’t include ASL users. I also have heard that some of KODAs (hearing Kids of Deaf Adults) are delayed in English at an early age since they use ASL at home as their first language and I think that the ESOL may be beneficial for them, too. Should we request for an ASL/English specialist to participate in those programs for deaf/hard of hearing children and KODAs at public schools? Does ESOL only apply to spoken foreign languages but not ASL because it is a visual language? The philosophy at their school system is as follows.

The goal of the ESOL program is to help the English Language Learners (ELLs) enrolled in the ESOL program to learn enough English to function linguistically and culturally in the County Public Schools and in the mainstream of American society. The education of the ELLs is a collaborative responsibility shared by the ESOL teacher, the classroom teacher, all other appropriate school staff, as well as the ELL student.

Anonymous Author

Wednesday, April 14, 2010

Survey for CI users using ASL as primary/secondary language

An audiology student at Gallaudet University sent us an email asking us to share with the rest of the community the link to her research project with the hopes to get more survey responses.

Survey participants must:
  1. be 18 or older,
  2. Must have had cochlear implant(s) at one time...either currently using or discontinued use accepted, and
  3. must use ASL as a primary or secondary language.
The survey should take 15-20 minutes, and your help would be very much appreciated. This research project has been approved by the Gallaudet Institutional Review Board.

Below is an short bio of the researcher, an explanation of this research and why this survey is useful:

I am the survey administrator and my name is Kristine Moore. I am a 3rd year Doctorate of Audiology Graduate Student at Gallaudet University. Gallaudet is a university in Washington, D.C. exclusively for deaf and hard of hearing individuals. Gallaudet accepts some hearing people each year, but it is designed and run with deafness as the primary and most influential factor. It's an incredible place. The discussion of ASL and cochlear implants and how the two can coincide successfully is a pertinent topic for the campus and for culture as a whole. For my research project I hope to study this area further by researching the factors influencing the decision to obtain cochlear implant(s) in individuals who use American Sign Language as a primary or secondary language. PLEASE click on the link to take the COMPLETELY CONFIDENTIAL survey to further the understanding of this topic. THANK YOU for generous gift of your time and survey responses.

PLEASE click on the link below to take a CONFIDENTIAL survey about Cochlear Implants and American Sign Language:

https://www.surveymonkey.com/s/ASLandCochlearImplantUsersPLEASETakeThisGallaudetUniversityResearchSurvey